More than one year later

It's good to be back here and see how long it's been since I made an update. I'm typing this post with both hands (which is amazing) and it's 8:30pm Sunday evening. Last pills were at 4pm.
I'm taking two pills three times per day now (5am, 10:30am, and 4pm).
Although I feel like I'm progressing too fast, the history here shows me that's not true. It must just be that I'm not happy to be where I am, regardless of how long it took to get here.
I do have definite on and off feelings, and can notice much more how the pills help.

Dose reduction - perhaps not

On my last visit with my MDS I mentioned that I was only taking three pills per day. He suggested that I might want to try 1.5 pills 3x per day. I haven't tried it yet.

A few weeks ago I was in a large crowd in the evening, and I felt like I could really have used that 4th pill. That was a new feeling, as I haven't had any kind of off/on feeling until then (or since).

Dose reduction

My MDS started me on 4 25-100 Sinemet per day. They can cause nausea, so my day is filled with soda cracker snacks. I decided to stop taking the evening pill, and I think I feel about the same (I changed the dose over a week ago).
One day, I may cut it down to two pills per day.

Sensitive finger

Strange feeling lately. My middle finger on my left hand is very sensitive to cold. Just started a few days ago.

PD related? or something else? Dunno.

Update: it takes me so long to post .....

Today, May 27, the sensitivity is gone.

CoQ10 news

I received a call from my doctor's office (my MDS, Dr. Jog). The research assistant explained that the QE3 study was being halted as the early findings were indicating that CoQ10 had no effect on PD progression.

Well, they tried. There's going to be a lot of things tried before we get to a cure.

Improvements, with caveats

I've been feeling a lot better now that I'm medicated. I can move easier, I can button my shirt, tie my shoes - all the normal things we take for granted.

One of the unexpected things for me was pain and stiffness. I think what may be happening is that I'm actually able to move further than before, but now my arm and leg are so unaccustomed to going that far that I have pain. While I was un-medicated I couldn't move stretch my hand back very far. Now I think I can go further; right across the pain threshold.

 My left hand can stretch so that my palm is up against the cabinet. My right hand can't go nearly as far and it's painful to go there. The odd thing about the pain is that it's not in my palm (which is being stretched), but in the back of my hand (which is being compressed).

Something to ask the doctor about.

Time for an update

My participation in the CoQ10 study is over. I had my last visit with the research nurse a few weeks ago, and now I'm just a regular PD patient. And this means ...... I've started medication. The doctor evaluated me and thought I didn't really need to be on meds yet, so I explained how I had difficulty driving because of the stiffness (dystonia) in my right foot. Then he said that since this is a safety issue, he'd rather put me on the Cadillac pill (Sinemet) than risk using anything less effective and have me get in an accident. I'm still interested in left foot driving solutions, but I'll see how this goes for a while first. I may even be putting off giving up driving a manual transmission for a while too.

How's it going you ask? Well, first thing is I'm typing this with two hands. It's not easy, but I'm getting through it. My right hand hasn't typed in a long time, or done much of anything else, so I'm getting used to just using my hand also. I'm feeling quite a bit better, and I only reached the full dose (you ramp up) a few days ago. My foot is alot less stiff, my arm is a lot less stiff, even my voice feels stronger. I haven't felt this normal in quite a while.

I've been working since the end of November, starting in Holland, MI and now thankfully in Troy, MI. So I'm crossing the border again every day. Work has been very busy, and exercise has unfortunately taken a back seat. We did get Wii Fit, and I've tried it out a bit. Judi is more disciplined though, and she's enjoying it.