Friday, May 27, 2011

Dose reduction

My MDS started me on 4 25-100 Sinemet per day. They can cause nausea, so my day is filled with soda cracker snacks. I decided to stop taking the evening pill, and I think I feel about the same (I changed the dose over a week ago).
One day, I may cut it down to two pills per day.

Thursday, May 26, 2011

Sensitive finger

Strange feeling lately. My middle finger on my left hand is very sensitive to cold. Just started a few days ago.

PD related? or something else? Dunno.

Update: it takes me so long to post .....

Today, May 27, the sensitivity is gone.

Tuesday, May 10, 2011

CoQ10 news

I received a call from my doctor's office (my MDS, Dr. Jog). The research assistant explained that the QE3 study was being halted as the early findings were indicating that CoQ10 had no effect on PD progression.

Well, they tried. There's going to be a lot of things tried before we get to a cure.

Saturday, May 7, 2011

Improvements, with caveats

I've been feeling a lot better now that I'm medicated. I can move easier, I can button my shirt, tie my shoes - all the normal things we take for granted.

One of the unexpected things for me was pain and stiffness. I think what may be happening is that I'm actually able to move further than before, but now my arm and leg are so unaccustomed to going that far that I have pain. While I was un-medicated I couldn't move stretch my hand back very far. Now I think I can go further; right across the pain threshold.

 My left hand can stretch so that my palm is up against the cabinet. My right hand can't go nearly as far and it's painful to go there. The odd thing about the pain is that it's not in my palm (which is being stretched), but in the back of my hand (which is being compressed).

Something to ask the doctor about.