Showing posts with label evaluation. Show all posts
Showing posts with label evaluation. Show all posts

Sunday, November 25, 2012

More than one year later

It's good to be back here and see how long it's been since I made an update. I'm typing this post with both hands (which is amazing) and it's 8:30pm Sunday evening. Last pills were at 4pm.
I'm taking two pills three times per day now (5am, 10:30am, and 4pm).
Although I feel like I'm progressing too fast, the history here shows me that's not true. It must just be that I'm not happy to be where I am, regardless of how long it took to get here.
I do have definite on and off feelings, and can notice much more how the pills help.

Friday, April 17, 2009

Movement Disorders clinic - first visit

First off, I had a friend from church along for the ride. It was great to have someone to talk with on the way there, and especially to "debrief with" on the way back.

Dr. Jog is the head of the clinic, and he did my evaluation. There's a wide range of tests that he took me through some simple physical tasks;
  • follow his finger with just my eyes
  • point at his finger and then my nose, back and forth while he moves his finger
  • a number of activities with first one hand and then the other, some resistance testing, and some "looseness" testing where he would move my arms while I (attempted to) relaxed
  • He observed me walking, recover from being pushed off balance, and demonstrate an activity (blowing up a balloon) that he told me later was to evaluate cognitive ability.
Although he said that many of my symptoms were atypical for Parkinsons' (PD), he felt still that a diagnosis of PD was accurate for me. He has evaluated 15,000 patients, and there's no consistent set of symptoms in all people with PD.

He gave me two options;
  1. Start taking medication to give me symptom relief. It's my choice, and for me to decide if the symptoms are severe enough that they keep me from having the quality of life I need or prevent me from working.
  2. Participate in a study for a drug that may slow down the progression of PD. The subjects are in three groups; patients getting a high dose, a medium dose, and a placebo.
There would be no point in being in the study if I felt I would need to exercise option 1 within the next 12 to 18 months. Subjects in the study are patients not taking drugs for symptom relief.

I'll see the doctor in about 3 months (when some of the current stressful situations are over) and let him know whether I feel I can be a part of the study.

Thursday, June 12, 2008

Neurologist

I saw a neurologist in Windsor. He had me walk and point, etc. He didn't think that I have Parkinsons' (which is what I was worrying it was), since my symptoms were not consistent with it.

Parkinsons' patients have a tremor at rest. He described mine as an intentional tremor, I shake when I'm trying to do something requiring fine motor skills.

He sent me for a CT scan, just to start the diagnosis.

The following weekend, I was talking with my parents who mentioned my uncle also shakes.