Wednesday, June 12, 2013

Sinemet doseage

From a post I made in the forum on plm (patientslikeme.com);

05/30
I'm taking 8 25/100 per day now, on an uneven schedule. 5am (2), get up at 5:30,  8-8:30 (1) 11 (2) 2-2:30 (1) 5 (2). Then I go all night without. I go to bed about 9. I actually notice the 1 pill at 8 and 2 brings me back to 'on' for a while and I can then wait for the 11 and 5 dose. This is all to try to schedule around eating and driving.
Update 06/12 - I had been too lazy to cut pills in half, but in the interest of trying to smooth out highs and lows I decided to adjust again. So now it's two pills at 5, then 1-1/2 at 8, 11, 2, and 5. Same amount of pills per day. Interesting side effect though - dyskenesia has started in my foot. I sure was hoping I could put that one off for a lot longer. I think I'm going to try actually reducing the amount of Sinemet I take by a little bit, and see how that works out.

Thursday, April 4, 2013

Swinging


It feels great to be 'on'. Judi and I went for a walk after supper tonight, and my arm was swinging - just like a regular person.

The times when my right side feels normal are so appreciated. I remember a PWP in Windsor saying to me; "thank God for Sinemet". I guess now I know what he meant.

I don't know when I last updated about my dosage. I had made my way to two pills, three times per day. Then I found that I was going 'off', and thought I'd just shorten the time between doses. I soon found that I was changing my schedule such that it didn't match up to lunch, and especially with my drive home. So - I tried a different approach; I take two pills at 5am, eat breakfast at 6, take one pill at about 9am, then two pills at 11am, eat lunch at noon, take one pill at about 3pm, then finally two pills at 5pm, and get ready to go home about 5:30.
I wonder if anyone else takes uneven doses like this. I'm going to ask on plm.