Had a followup appointment January 27. I stated that I would like to have less tremor in my right arm. We tried a few things and the team (4 doctors including Dr Jog) stated that this may be as good as it's going to get with DBS alone. They asked about how much levadopa I am taking (none) and that I may want to add that. We also discussed the use of botox. which would only last for three months and would be costly.
So we were left with Program 1, which was the 'old' settings saved last July, and Program 2, which was now slightly modified. The tremor was not as severe, and my walking was still better with P2 than P1.We left with me set to P2.
On the way home, I felt my right arm 'release' and the tremor stopped. This lasted for several days. Approximately on Friday this changed - I woke up with the tremor and tightness in my right arm much more severe. I switched to P1 and found the tremor much reduced and I could walk better than with P2.
We had expected that I would use P2 when I wanted to walk, and P1 when I wanted the tremor to stop. But now P1 is the 'go to' program and P2 is not being used.
DBS is still a mystery to me.
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