My participation in the CoQ10 study is over. I had my last visit with the research nurse a few weeks ago, and now I'm just a regular PD patient. And this means ...... I've started medication. The doctor evaluated me and thought I didn't really need to be on meds yet, so I explained how I had difficulty driving because of the stiffness (dystonia) in my right foot. Then he said that since this is a safety issue, he'd rather put me on the Cadillac pill (Sinemet) than risk using anything less effective and have me get in an accident. I'm still interested in left foot driving solutions, but I'll see how this goes for a while first. I may even be putting off giving up driving a manual transmission for a while too.
How's it going you ask? Well, first thing is I'm typing this with two hands. It's not easy, but I'm getting through it. My right hand hasn't typed in a long time, or done much of anything else, so I'm getting used to just using my hand also. I'm feeling quite a bit better, and I only reached the full dose (you ramp up) a few days ago. My foot is alot less stiff, my arm is a lot less stiff, even my voice feels stronger. I haven't felt this normal in quite a while.
I've been working since the end of November, starting in Holland, MI and now thankfully in Troy, MI. So I'm crossing the border again every day. Work has been very busy, and exercise has unfortunately taken a back seat. We did get Wii Fit, and I've tried it out a bit. Judi is more disciplined though, and she's enjoying it.
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Rick, hi, it's me Monica.
I got caught up on your staus and am glad to hear you are better. In the last yr and a half Ive been on Stalevo I feel somewhat releived symptoms wise. Although it is not perfect I am thankful for what it does allow me to do. Ive been freezing alot and saw the doc and she prescrived Amantadine. I told her I'd try it. But honestly the side effects and long term stuff dont convince me its ok. Oh, and where its originated to treat. I get so scared about adding another drug. So Im putting it off.
Best,
Monica
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